Mister Sean

My brother was diagnosed with Wiskott-Aldrich Syndrome (WAS) in 1965, and passed away from complications in 1968.  We are still learning what WAS is and what it means for our family.  I am a carrier, and  Sean is our only son.  He does not bruise or bleed, and neither did my brother.  Sean has unnoticeable petechiae on the back of his neck and a few random dots in other areas.  He has had mild eczema that cleared up quickly with treatment.  Sean began monthly IVIG infusions at the age of 3 weeks.

This journal is still under construction.  To see a picture of Sean, click on the camera below.