My brother was diagnosed with Wiskott-Aldrich Syndrome (WAS) in 1965, and passed away from complications in 1968. We are still learning what WAS is and what it means for our family. I am a carrier, and Sean is our only son. He does not bruise or bleed, and neither did my brother. Sean has unnoticeable petechiae on the back of his neck and a few random dots in other areas. He has had mild eczema that cleared up quickly with treatment. Sean began monthly IVIG infusions at the age of 3 weeks.
This journal is still under construction. To see a picture of Sean, click on the camera below.
The transplant was last night. The girls were able to come visit.
He's been very nausous the past 3 days. They now have him on 4 nausea meds. The 4th one had a strange side-effect....he gets "kissy" The 2nd dose, I didn't even know they had given him some until he started attacking me with kisses and I asked the nurse if they had given him more. hehe
He's a bit fussy this morning. He had been very happy up until now. They told me he may be crabby for a few days.
Email still isn't working in my room, but i was able to come down to the library for a few minutes.
Sean completed his last dose of chemo about an hour ago. Other than a few episodes of vomiting, he sailed right through the treatments.
He will now have 2 days of 'rest', then the transplant will be on Friday!!!!!
testing, having trouble with the hospital isp