Where to begin....well, the central line placement was moved up to Tuesday. This sounded good as Stephanie's surgery would be on Wednesday. Monday night, Sean had to fast after midnight. He did very well through the night. Started to get restless late morning while waiting for anesthesia. The doc checked his blood counts while under and decided that his levels were too low to put in the central line. They went ahead and did the bone marrow biopsy that was planned for Friday.
Afterward, he was admitted to the hematology floor. The plan was to give him platelets and plasma over-night and do the central line placement the next morning. However, they were unable to schedule the central line for Wednesday and we were discharged around 4:00 Tuesday evening.
Tuesday afternoon, my oldest daughter and I took the Central Line Care Class. This is a new program offered at the hospital to teach family members how to flush out the tubes of a central line. Since my daughter is with me more hours per day than my husband, it seemed practical to have her be my assistant. It doesn't seem at all complicated, but I'm sure it's easier to do on a doll than on a wiggly 7 mo. old.
Because this is a new class, they are making a brochure. The photographer took pictures while we were learning. Don't know when the brochure will be completed, but it's exciting to think that Sean may be in it.
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Sean was admitted on Thursday evening to begin transfusions in prep for his central line placement.
One of the biggest things that I was thankful for was that they allowed Sean to sleep with me!! That may not seem like that big of a deal, but he is used to going to bed in his crib and then snuggling in with me in the early morning hours...which are the hours he had to fast too.
I don't know if it was the transfusions, a gift of God or both...well, technically a transfusion IS a gift of God too. Anyway, Sean slept very soundly, even crashing within 5 min. of a blood draw at 4 a.m. when he should have been starving. Since he has such difficult veins, the bone marrow coordinator had arranged for the transport team to do all his blood work.
The central line placement went smoothly and he was discharged by afternoon. wwwwwoooooohhhhoooo, no more pokes!!!!!
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Please continue to pray for our 2nd daughter. She had her back surgery on Wednesday and still in a considerable amount of pain.
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