Mister Sean

My brother was diagnosed with Wiskott-Aldrich Syndrome (WAS) in 1965, and passed away from complications in 1968. We are still learning what WAS is and what it means for our family. I am a carrier, and Sean is our only son. He does not bruise or bleed, and neither did my brother. Sean has unnoticeable petechiae on the back of his neck and a few random dots in other areas. He has had mild eczema that cleared up quickly with treatment. Sean began monthly IVIG infusions at the age of 3 weeks.

This journal is still under construction. To see a picture of Sean, click on the camera below.

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vacuum: Best in inet !!!!

Aimee: Hi! Keeping you in my thoughts and prayers. Love to you and your family! Grow cells Grow!!!

Peggy: Poor boy on the vomitting, but I'm praising God he sailed through!!

Bob: Contd... the mantle growing up. Two of my nephews had non-sibling BMTs (the same donor!) and are doing well. I'm sure you'll do well, too.

Bob: Godspeed, Mr. Sean, and Mom & Dad! I am a 42-yr-old WAS "club member" with five kids of my own and had the opportunity to train astronauts for 10 yrs (now I'm staying at home with the kids while writing novels). I also need to get a monthly IVIG infusion, as I had my spleen out at 28 (at NIH) but never had a BMT--just never got that sick. I lost two brothers to WAS, but as I was only 1 1/2 when the younger of the two passed I never knew them, beyond the single photo of each on the mantle growin

Kerry: Hi -- I saw your post on another kids site. My son had WAS and was transplanted at 7 months. Pre-transplant we went through hell getting IVIG and such, too. I'm sorry that you have to go through it all, but he will get better. Sam did not lose his spleen but was close to it. His counts were really low and every trip to get platelets I worried that he would lose it. If you need to talk or anything please feel free to contact me. You can email me at kerryveitch@comcast.net. It sounds like

Peggy: Hey Bev! I had to send the link of Sean's photo to my sister, you just never know! :)Praying always for Sean, and for your entire family!

Mom: You have our love and prayers. Sean is Blessed with a wonderful Daddy and Momma. I admire you faith. Love never failth.

mary: Hi. I am so sorry to hear that your son has WAS my son did also but he had a bone marrow transplant. He still has it a bit rough but we are hanging in there. We will be praying for sweet Sean!

Tonya: I just wanted to say Hi, and I know you must be a strong person, I will be praying for Sean and your family. I am sorry about your brother.

Audra: The picture of Sean is adorable. What a sweet smile. :)